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pnainfo
Приєднався 18 січ 2008
This is the official UA-cam channel for the Pituitary Network Association (PNA), which is the leading non-profit orginization worldwide for pituitary disorders. For more information please visit, www.pituitary.org
Відео
Advances in Removing Invasive Pituitary Tumors
Переглядів 3584 місяці тому
Advances in Removing Invasive Pituitary Tumors
The Natural History of Pituitary Neuroendocrine Tumors
Переглядів 2126 місяців тому
The Natural History of Pituitary Neuroendocrine Tumors
The role of inferior petrosal sinus sampling in the era of modern neuroimaging
Переглядів 989Рік тому
The role of inferior petrosal sinus sampling in the era of modern neuroimaging
Transsphenoidal Surgery For Cushing's Disease
Переглядів 335Рік тому
Presented by Dr. Manish Aghi Learning objectives: To understand symptoms of Cushing’s disease and the mechanisms by which they arise. To become familiar with the process of diagnosing Cushing’s disease To understand the role of surgery in treating Cushing’s disease
Surgical Management of Functional Pituitary Tumors
Переглядів 270Рік тому
Presented by: Kaisorn Chaichana M.D. 1. Understand surgical candidates of surgery for patients with pituitary tumors. 2. Describe the typical surgery for patients with pituitary tumors. 3. Describe the typical postoperative course for patients undergoing functional and non functional pituitary tumors.
Pituitary Apoplexy: New Approaches To An Old Problem
Переглядів 1,7 тис.Рік тому
Learning objective: 1. To recognize the signs and symptoms of pituitary apoplexy, especially in patients harboring pituitary tumors that have not had surgery 2. To understand the roles of surgery and medical management in the treatment of apoplexy 3. To determine if timing of surgery impacts outcomes from pituitary apoplexy
Intracellular Glucocorticoid Reduction
Переглядів 2112 роки тому
Intracellular glucocorticoid reduction: an investigational approach to management of Cushing’s syndrome, autonomous cortisol secretion, and the side effects of glucocorticoid medicines
Pituitary Centers of Excellence: Multidisciplinary Care for Pituitary Patients
Переглядів 4512 роки тому
Presented by: Pouneh K. Fazeli, MD, MPH Paul A. Gardner, MD Hussain Mahmud, MD Georgios A. Zenonos LEARNING OBJECTIVES: After completion of this webinar, participants should be able to: Describe the role of patient volume in quality of care Name the various subspecialists involved in a Pituitary Center of Excellence Understand the ways that a Pituitary Center of Excellence upholds and advances ...
Pituitary Tumors
Переглядів 3,6 тис.2 роки тому
Presented By: Dr. Michael Brisman Learning Objectives: 1- Identify the different parts of the pituitary glands and their functions. 2- Gain a better understanding of pituitary gland anatomy. 3- Understand the classification of pituitary tumors. 4- Understand the management and treatment options for pituitary tumors.
PNA's 30th Anniversary
Переглядів 1832 роки тому
Congrats PNA for 30 years; Watch now to see how it all began!
Optimizing Patient Quality-of-Life Following Pituitary Adenoma Surgery
Переглядів 8102 роки тому
Optimizing Patient Quality-in-Life Following Pituitary Adenoma Surgery OBJECTIVES 1. Describe current smell, taste, and quality-of-life outcomes following endoscopic endonasal transsphenoidal surgery for resection of pituitary adenomas 2. Identify promising medical interventions to optimize post-operative smell, taste, and quality-of-life following pituitary adenoma surgery 3. Introduce a novel...
Aggressive Pituitary Neuroendocrine Tumor: What to Know
Переглядів 1,4 тис.2 роки тому
Surgery For Aggressive Pituitary Neuroendocrine Tumor Presented By Dr. Mario Zuccarello And Dr. Jonathan Forbes Learning Objectives: -Learn how to identify pituitary tumors with an increased risk of recurrence -Learn the importance of HE staining, immunohistochemistry, and lineage restricted transcription factors in characterization of pituitary tumors -Learn medical and surgical strategies for...
Advanced Technologies in Pituitary Surgery: The role of VR, AR and AI in achieving better outcomes
Переглядів 2862 роки тому
Advanced Technologies in Pituitary Surgery: The role of VR, AR and AI in achieving better outcomes
Why do I feel lousy after treatment of my pituitary tumor?
Переглядів 9 тис.2 роки тому
Why do I feel lousy after treatment of my pituitary tumor?
A Large Single Institutional Comparison of Microscopic and Endoscopic Pituitary Surgery
Переглядів 4783 роки тому
A Large Single Institutional Comparison of Microscopic and Endoscopic Pituitary Surgery
Recurrent Pituitary Adenomas - What are the Options?
Переглядів 1,4 тис.3 роки тому
Recurrent Pituitary Adenomas - What are the Options?
Expect More From Pituitary Surgery: Difference-Makers for Post-Operative Outcomes
Переглядів 5093 роки тому
Expect More From Pituitary Surgery: Difference-Makers for Post-Operative Outcomes
Indications For Surgery Prolactinomas
Переглядів 2 тис.3 роки тому
Indications For Surgery Prolactinomas
What Every Patient Needs to Know About Recent Advancements in Pituitary Surgery
Переглядів 1,1 тис.4 роки тому
What Every Patient Needs to Know About Recent Advancements in Pituitary Surgery
Pituitary Surgery During the Covid 19 Pandemic
Переглядів 5774 роки тому
Pituitary Surgery During the Covid 19 Pandemic
Implications of Covid 19 Pandemic for Pituitary Patients
Переглядів 1,1 тис.4 роки тому
Implications of Covid 19 Pandemic for Pituitary Patients
Perioperative care for the Pituitary Patient:Optimizing the Surgical Experience
Переглядів 7064 роки тому
Perioperative care for the Pituitary Patient:Optimizing the Surgical Experience
Management of Recurrent Pituitary Tumors Endoscopic Endonasal Approach
Переглядів 7914 роки тому
Management of Recurrent Pituitary Tumors Endoscopic Endonasal Approach
Do these have any connection to generics? Are they hereditary?
If only I would of met her she’s so beautiful!!
There's no reason to believe in an intercessory God
I have one too Im a 63 yo male.. It has been a problem for about 15 years but my previous doc was incompetent . My prolactine is 83 ish and they put me on Bromocriptine.The treatment makes me nautilus (sucks) and I have a compulsive action too. . It also crushed my testosterone (which left me too weak to do anything but sleep18 hrs a day) sweating. vision issues, ED, headaches and dizziness, trouble concentrating. Lazy docs are a bitch.. My diabetic doc said "I DONT CARE ABOUT THAT" She is gone too. If that little voice says something is WRONG find a new doc. Your life depends on it. For me only time will tell early days.
I had partial empty sella It is very hard to me..due depression and anxiety low sex drive
Funny, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much easier and potent now!
Funny, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much easier and potent now!
I feel so alone in my pit tumour journey. Doctors and Endos just brush me off and throw pills and antidepressants at me. They literally make me feel crazy.
My Dad had acromegaly. He had huge hands, feet and jaw. He lived to 95 years and died in 2022
One in five has some version of PTSD? yeah, I believe that
I’m having my surgery on Monday morning this video was very informative and helpful
My wife has a childhood third ventricle tumor since about 7yrs old. Now 41, migraines, body and spine/neck pain, sometimes knife in temple pain, very anxious type, stays away from people like a wild rabbit. Very distrusting. Night terrors, yet goes right back to sleep not remebering them.
Excellent presentation. Thank you. It helped me in the evaluation of a patient of mine receiving avelumab for metastatic urothelial cancer who presents with nausea, asthenia, low sodium, high potassium, and low blood pressure.
Im beg for surgery, i have this tumor for years, in 4/2023 ...my eyes was watering,painful,first eye doctor "pink eye" started worsted headaches, nausea,another eye doctor sendme E.R they find a pituitary tumor, after i loss my job of 28 years,im in medicaid,now my regular doctor referred me to different doctors, my hormones are normal...but loss sometimes my vision, headaches, nausea, i fall 5 times,i live in Nevada...no sympathy from my symptoms, waiting to grows!! Give medicine for migraine 😫 dosent work 😢
So how r u now? Wht kind of vision issues do u deal with
I still haven't help 😢
i worked in a facility as a programmer ran by dr parlow at ucla and i can tell that control freak creep puts cameras everywhere including the bathrooms and does allow anybody to talk. he spends most of his time watching people. i have nothing good to say about that evil person. this world is a much better place without him
Daughter at 3000 ( uk), lh v high, tsh very high. No progesterone and known by her psychaitrists for years. Pituatary tumour ignored for years. Instead put on worst poss meds for pit tumour...anti psychotic meds which further crush dopamine. 8 years of her life lost to negligent psych docs who ignored blatant physical issues and said she was schizophrenic. She spent 2 yrs imprisoned in hospital. She is 31 now. She has an ignored pit tumour!!! It is beyond belief that she was never told
I had a friend who died from a stroke at 45 from gigantism diagnosed in his teens. It's a really rare condition.
A great presentation. Thanks a lot
I was enjoying this and found it very, very informative, but when you went on to quote ''I've been to ten different doctors and none of them diagnosed my pituitary disorder.' What are you going to do with that anger? You could just be angry or do something with it.' That's just plain dismissive of how debilitating it is to live with these conditions. Especially if you've seen that many doctors! You're telling people to drive themselves insane at that point. Anger is justified when you've been to so many medical professionals, let alone having pituitary disorders in the first place. I don't understand where you expect repeatedly ignored/dismissed patients to get this 'get-up-and-go' or drive to channel their anger into something. Into what exactly? You neglect to tell us. People have the right to feel anger about these disorders ruining their lives, relationships, prospects, childhoods, etc. Your entire life, everyone has looked at you as if you're making up a fake, fantasy fairy world of imaginary suffering, because the awareness around these disorders is abysmal and all people see is that you're 'fat'. They assign every struggle you face and describe to your weight.
I just found this and glad i listened to it. I honestly didn’t think i would understand much of this, but having acromegaly, and having the tumor removed from the pituitary gland, i understood most of everything and could completely relate to as lot of the material.. i was very lucky and the tumor was found early but took a long time to get on the correct meds and my mood swings were horrible, my ex wife can attest to that. Thanks for the video it was really so informative…
My husband too!!😢
This is very insiteful!! I’ve dealt with headaches my whole life, since my elementary school years and was always told it’s hormonal. In teen to 40’s I’ve dealt with heavy to irregular periods, cysts and fibroids. Resulting at age 47 with a hysterectomy. I’ve always felt tired, woke up tired/not well rested got sick easily. Now late 40’s to age 50 I’ve been told Hashimoto thyroid, high oxalate levels, vitamin deficiencies and now just got brain mri results saying possible sella turcica cyst or low-density lesion “ of the brain. What type doctor do I ask to see or how do I advocate for myself? I’ve been out of work so sick with fibromyalgia and debilitating headaches. Any advice on who to talk to or get help from? What my next medical step might be?
I have had a pituitary adenoma of which I was required to undergo for rain surgeries. Those did save my life. However, I have had depression, anxiety, irritability, etc. etc. for many years, and I have to find it every single day. I see a psychiatrist, a psychotherapist, and I take plenty of medication’s for it. It’s what keeps me alive. I also have a very strong faith in God and a great family. I do go to church, and that is definitely helping me. However, sometimes I don’t know if I want to cry, scream, or if I’m overly happy. I can’t work because of this thing so I do get benefits from the government. That has been a lifesaver. Even though this is not a malignant tumor, it can still cause hell in one’s life. There have been days where I have had so much anxiety that I can’t function. Like I said earlier, I have to fight through this every single day. I know what you guys are going through. This tumor has also caused a lot of other medical issues. Luckily, most of the tumor was removed through surgery but I still have remnants left. I have to go for an MRI tomorrow morning. I am a little bit apprehensive about that so we’ll see how it goes. I love y’all! Take it one day at a time.
I would be afraid to take DA when pregnant, maybe a reduced or more spread out dose.
505 pro lactin
I am so sorry. She is a sweet girl
I had had a pituitary tumor since May of 2003, here in Vermont. I realize that it may be dangerous to do transphenoidal, surgery, but when I begged for non invasive surgery at UVM medical center, while it was growing to huge now, they said be lucky it has not killed you, or live with any mental problems. The last one was a couple of months ago with June Gleobus at Community Health Center where she says ignore it and treat the symptoms. Since 2020 it has been larger than a cm. I feel hot feelings in my head, dizziness, and closed in vision. Or else doctors say, be lucky it has not killed you yet, or wont do pills because of sugar level risks. This is very stupid. They billed my insurance at UVM medical center in Burlington Vermont telling me they will not do anything. I FEEL LIKE I HAVE A TIME BOMB IN MY HAND. I also feel weak alot. Can anyone help. Not even medicaid in Vermont cares less. Sueellen Bottligi ask her. Patient advocates SUCK here.
Rn I have a rathke cleft cyste rn which messed up my hormone levels. Im being treated by a bad hospital rn, im taking cabergoline for it rn and still no effect after a few weeks…
But we’ll be alright!
This poor girl this was heart breaking. But damn if she was 6ft6 here than how tall is that reporter walking near her they are the same height
And all my doctor tells me to do is lose weight which I can’t because of my genetics, PCOS, pituitary tumour, Cushing syndrome and early menopause (I’m 23)
Is this program still available today I would like to dialogue with someone very important
Great presentation. I'll come back here after my surgery. 8Dec.
Disappointed that Shehan's syndrome in women with severe post partum hemorrhage not being mentioned. Also disappointed that the case scenarios were male focused as well.
😂😂
U hv’nt watched it thoroughly i guess .
The left side of my body went numb back in October suffering from Long Covid come to find out in the ER getting an MRI they saw something odd about my pituitary gland and had me see my PCP who sent out another MRI Stat! Then I was told the other day one side of my Pituitary Gland is bigger than the other and I have consultation with a Neurosurgeon on the 13th of December.
So wht did the neurosurgeon say
Hello sir recently I found rathke cleft with size 8x6 mm and i feel pressure back and side of my head specially while lying down my back head pain.... constant headache and pressure behind the eyes also...my eyes power will increased every 2-3 years.... please suggest surgey or not.
Hello! are you having difficulty creating images in your head? it is called aphantasia. I have the cysts too , I was wondering if it is connected to that.
What an informative video. Thank you so much
I had my pituitary surgery on the 01 November 2022 @ Helen Joseph Hospital It went well and am grateful to the doctor and staff Am recovering nicely @ home
Are you back to work? I'll have mine next week.
My surgery went very well, I feel improvement of my vision almost immediately and now about 4 weeks after the surgery some of my body parts becoming normal from swelling. Shortly all the good sides mentioned in this presentation implied my experience
I heard the nose pack hurt so bad. How's your surgery?
As I said my surgery went perfectly, no pain what so ever just the next day home, no special nose pain at all
I am diagnosed with empty sella syndrome on post pregnancy. But it took 4.5yrs to find out the problem. I went thru so much of weight loss, mental stress, physical weakness, heavy menses bleeding, I couldn't take care of my baby too. Even my family didn't understand my problem. Worst part of life. Finally I end up with flatteren pituitary gland and live with it.
So wht did d doc say inview of empty sella. Do u hv vision issues?
I was told in 2020 that the tumor was too small to cause any symptoms (no treatment needed) yeah right,2 years later without treatment, I have no menstrual cycles in one year, blurry vision, can't get pregnant, headaches, vomiting EVERYDAY, EXTREME ANXIETY, heart palpitations, and can't even work
How are you now?
@@bekind3050 I’m doing better now because I ordered cabergoline off the dark web
@@naijaaprincesswhat is cabergoline ?
I have a pituitary tumor causing me hell on earth. Extreme anxiety and vomiting and no doctor will treat it
You need to deal with it Your symptoms are part of my life Since childhood due to pituitary gland
So do u hv vision issues?
Start looking into natural treatments thr doctors won't do anything for you I've had my diagnoses since 2018 haven't had a doctor hekp me yet but I've been to several and spent 1000's
🤑🤑🤑
I was born with my tumor. I didn’t know this at the time though. At age 11 the doctor told my mom I was obese and put me on a diet. Spent a lifetime of this with doctors until I started to go blind in 2016. I was 56. My tumor was 1.7 CM. Had 3 surgeries in 18 months. The last one they removed my pituitary gland.
Thank u for this I suffer with one and can't believe how fast I have lost weight, can't eat, I already had PTSD, anxiety and an irregular heart beat. My trauma started from 5 til now (30)
I can't find much info on prolactinoma >4cm
You’re simply amazing! Very emotionally in-tuned and intelligent, as well as educated on the subject and able to convey in such a way that can touches everyone on any one of those points. Focusing on important aspect of a physiological condition and drawing the right connections. It takes a gift to be able to do that, an innate gift. Wish more docs looked at the patient story holistically, trying to tell the story vs treat symptoms only. I think this is systematic and there is also a problem with the health system where doctors are not incentivized and fall victim to focusing on that only.
7 years ago, I developed non alcohol fatty liver, jaundice. I had a massive blood test. High cholesterol, TSH was 8.93. The dr put me on blood pressure meds and statins. I wasn't aware of what the TSH meant as I trusted my dr. I was only jaundiced for 3 days. Hemoglobin, hemocrit were also elevated. Vitamin D was low. Nothing was said or done about this. I then developed kidney issues, uti's monthly. Doctors ignored it. Here, take antibiotics. My TSH continued to rise. Last year, my white blood cells/absolute nuetrophils were elevated, not massively high, but 11000. My doctor ignored it. My TSH was even higher. I quit seeing this doctor and found one that would listen to me. I handed him prints of my last 7 years of blood work. He said oh yes, I can clearly see what's going on. He ordered a TSH, Serum Cortison, FT4 test. TSH was 13.94, FT4 normal, Cortisol was in range, but at the highest side. He prescribed Levothyroxine. I retested 6 weeks later. My TSH skyrocketed to 17.22. He upped the dose to 75mcg. I test again next week. While I do feel somewhat better with some symptoms, but some have become worse, I have a funny feeling that my I may have a Pituitary tumor based on symptoms and seeing how fast my TSH skyrocketed once starting Levothyroxine. I hope I am wrong and hoping it's due to absorption issues as I have gastro issues. I currently have vision issues and need reading glasses, but I am 48 too. Not sure if that is age related or Pituitary. I have no issues with side view that is common with Pituitary tumors. I get lightheaded bad. Bone pains. I know Levothyroxine, low vitamin levels can cause this too. My blood pressure is great with Levothyroxine. 115/75. I don't take bp meds or statins now.
Update? I have a similar story. My thyroid started acting out a year ago (and i was healthy).. it was horrible TSH first found at like 16. They immediately screened me for thyroid cancer. I have nodules all over my thyroid still til this day. I was only 21 at the time. Anyways it raised an eyebrow for me for sure. They kept increasing my medicine and I just kept getting sicker. The numbers slowly got better over time but I always told myself if I felt after a year my body wasn't better.. I'd start fighting for an answer again. A year has passed. nothing changed my TSH was extremely high in the hospital one day after I had an "episode". HIgh blood pressure, high heart rate... swollen stomach.. moon face.. yet the doctors didn't know why so they gave me high BP and released me and told me it was my thyroid. Even the fluids weren't helping. Why i believe it's cushings? I have all of cushings symptoms and recently we discovered my prolactin was 3x higher than it should be. (hormone secreting from the pituitary gland). My blood cortisol levels were normal when they tested me originally. It's been a tough fight because I'm too sick to even get out of bed these days. I know my body is breaking down and I feel that a diagnosis and treatment is critical for me. I'm having vision problems, horrible brain fog, memory loss, tingling feelings in my limbs, etc.
@@zoeprejean4616 Are you on Levothyroxine for your high tsh? Are you 100% gluten and dairy free? Did you catch covid or take the jab just prior to your thyroid issues?
@@zoeprejean4616 High prolactin is often due to a noncancerous tumor on the pituitary gland.
@@zoeprejean4616 With cushing's, your cortisol levels will be raised as well. My cortisol was 22. The max limit in range is 22. I have no idea what it was prior to that test. I do know I had the cushing's body that began in 2015 with my misdiagnosis. I gained 50+ pounds during that time. I have since lost 50+ pounds. I recently found out I have gluten and dairy issues. If I eat gluten, I have a massive inflammatory attack on my kidneys, liver, pancreas, guts, bones. I have been playing around with gluten and dairy free and feel great once both are out of my body for 2 weeks. Now, if I have the smallest bit of gluten, I am bed ridden for several days. My new doctor said the elevated white blood cells is due to an auto immune response to gluten and dairy. I joined a celiac group and was shocked at the symptoms it causes. I had every symptom of celiac, but the only test is to eat gluten for several weeks, then test for it. I refuse to eat gluten for the test. It isn't worth the pain I go through.
@@zoeprejean4616 I'm on 100mcg of levothyroxine. My last test had my tsh down to 2.4. Still high, but in range. I am about to request 12.5 or 25mcg dose increase to get my tsh down to 0.5-1.0.
Dr Igudia natural herbs remedies are indeed the best when it comes type 2 diabetes treatment and permanent cure. His natural herbs cured my type 2 diabetes completely after just three weeks of using the herbs.
Did i here donors, I want
pituitary tumour it can turn life upside down, it’s so painful I kept passing out, now I can’t ever remember having it at all, it was not pulled out of my head, it just gone
Someone should have known right away what she had. I don't understand why they can't remove the tumor. They usually do and go through your nose. She is beautiful.
Is there any updates May 2022? 🥺
She died in 2013 from a heart attack.